It’s a
gorgeous Saturday afternoon and we just spent almost two hours at the park.
With the sudden arrival of warm weather, the park is bustling with kids. Normally, Coleman sticks to a solid routine
at the park: first the red swing, then
the tunnel, etc. But today with all the
kids running around, Coleman just wants to watch. He loves watching kids run and play. He moves his fingers in front of his face in excitement
like a mad scientist, and laughs out loud as they run past him. “I got you Grace!” one boy yells as he hurls
past Coleman and tags the young girl. “I
GOT YOU GRACE!” Coleman echoes, and the boy glances back at him confused, but
then runs off again. Grace then speeds
past Coleman in pursuit of the others.
Coleman squeals in delight as she passes. “Go! Go! ” he yells to her. I’m
standing a few feet behind him just watching it all. A dad is standing next to me, and he watches
Coleman with a smile which makes me happy.
I often feel compelled to tell strangers that Coleman has autism as a
means of explaining his peculiar behaviors.
But this dad's smile tells me I don’t have to. “Ten more minutes guys!” he calls to his
kids. Coleman yells out beside him “Ten
more minutes guys!”
Most days at
the park I don’t let Coleman stand around and watch the kids. “Let’s go on the slide” I say, coaxing him
away from his spot toward the slide. He
agrees but as soon as we go down the slide, he runs back to the same spot to
watch the kids run by. But today is the
first weekend since late fall that there are a lot of kids at the park. Over the winter it was pretty much just
Coleman and I. So I let him watch. Almost the entire time we are there, he
watches and laughs. When we finally walk
to the car to head home, Coleman turns to me and says happily, “That was
fun!” I hug and him say “That WAS fun!”
We drive
across town and then into our neighborhood where people are out and about on
every street. I wave from my open
window, and continue to drive. As I
approach the block before ours, I see a group of kids approaching. I know immediately who they are: they are a posse of boys all Coleman’s
age. A few of them I know well. I stop at the intersection and watch
them. There are seven of them, three on
bikes, one on roller blades, and three walking.
One of them has a lacrosse stick and he’s catching a ball from one of
the other boys as they saunter along. They
are moving slowly, stopping every few feet, and bantering among
themselves. The one with the lacrosse
stick trips off the sidewalk but doesn’t fall and they all laugh. I can’t hear what is said but whatever it
was, they all laugh again in response.
I stare at
them – I can’t help myself. I’m looking
at their clothes, their hair, the way they walk, the way they casually laugh
with each other. Before I know it, all of the happy feelings from our time at the park have silently disappeared and I am left instead with a familiar lump that makes its way up my throat. I don’t want to but I can’t stop imagining Coleman walking along with them too. I
try not to think about this, but it’s like a flood in my brain that I can’t
stop. I wonder which one of the boys would be Coleman’s
bestie. I wonder how he would look in those calf high sports socks that they are all wearing. I wonder if they are talking
about girls yet. I glance in the
rear-view mirror at Coleman. He is
looking out the window at the boys too.
I realize we are not moving and so I start to proceed through the
intersection. As we pass, a few of the
boys recognize us and yell “Hi Coleman!!”
I wave and we keep going.
This is a
recurring agony: seeing typical kids
that Coleman would have been friends with, chumming around, doing stuff typical
boys his age are doing. Coleman will never be chumming around in a
small posse of his own, laughing with his pals as they walk up the street
playing lacrosse. And not only because
he can’t play lacrosse: because he
doesn’t have any friends. The
loneliness of having autism is heartbreaking.
When we get
back to the house, Coleman stands at the front door, looking out. “Where did the kids go?” he asks. I think about the boys. I say “I’m not sure buddy.” “Do you want to see them?” he asks, meaning
he wants to go see them. I contemplate
for a second taking him out for a walk to find them – maybe I can find them and
convince them to come back to our house to play tag. But I know Coleman really just wants to run,
not play tag. And he wants you to hold his hand while you run. I think how that will go over with the
boys. “OK, boys, thanks for coming.
Now everyone just starting running around, chasing each other , OK? And you, Tommy, take Coleman’s hand OK?” I wonder if there is something else I could
convince them to play. But Coleman’s
game repertoire consists largely of pre-school games like hide n seek, tag, and
duck, duck, goose and these boys are all 12 and 13 years old. Coleman is still looking outside. “Do you want to see them?” he asks
again. “I think they had to go to
school” I tell him, because I can’t bring myself to say that they can’t play
with him.
When the
girls were young, it seemed like there were always kids around. On lazy Saturdays we would round up the kids
in the neighborhood and play dodge ball.
Chalk covered the street in pastel patterns of names and hopscotch
boxes. Scooters and bikes littered the
driveway. But for Coleman, there is none of this. There are no friends. And
while he doesn’t understand ‘play’ in the traditional sense, nor does he
understand the term ‘friend’, he does desire the joy and fun that ‘friends’
bring. He craves social
interaction. Every weekend he asks “How
about we go…” and he waits. He waits for
me to fill in the blank with something fun to do. He’ll accept almost anything really – a trip
to the supermarket, Target, the library, a bike ride, even a walk down the
street. But most of our outings are just
he and I, and even though I try to stay engaged with him at these times,
constantly talking to him and asking questions, he quietly slides back into his
own world of scripting and tv shows.
The absence
of friends and social opportunities is one of the toughest parts of having a
child who is different. Coleman knows enough to want to play, but not
enough yet about how to play. He yearns for social interaction, yet is unable to converse back and forth and engage
appropriately. It’s as sad a catch 22 as
it gets. So we try find opportunities
for him to be with other kids. There are
some great programs run by SNAP (Special Needs Athletic Partnership) that we absolutely love and that Coleman thoroughly enjoys. But there is no unscheduled, unprogrammed social time. There is no calling his friends to play catch out front. No impromptu games of hide n' seek. No knock on the door asking if Coleman can come out and play. I've been thinking about this a lot lately. I wish for Coleman a time and place where he can be with other kids, kids that will see him arrive and
run up to him and happily exclaim “Hi Coleman!
Want to play tag?!” So I'm working on that. It's a bigger project than you might think. In the meantime, I figured out what Coleman needs in the near term. He needs his own Posse. I’m recruiting members if you are
interested. :)
No comments:
Post a Comment